KrabbeConnect works diligently to ease the burden of Krabbe disease. Patients and families living with and/or caring for someone with Krabbe disease face enormous financial dilemmas. Out-of-pocket medical expenses, large deductibles, unpaid time away from work, supportive therapeutic interventions not covered by insurance, medical equipment, and monthly over-the-counter medicines are just a few of the financial challenges of Krabbe disease. Thus, this program was created to support Krabbe disease families with the goal of easing the burden of the disease allowing you to focus on what’s important, the care and love you provide to your family.
Programs of Support
Note: These programs are for patients and their families who reside in the United States. KrabbeConnect’s ability to help outside of the US is limited. However, we will review and consider all requests.