The KrabbeConnect Hero page was created for individuals living and no longer living with Krabbe disease. This page helps others to understand the impact of the disease, helps educate healthcare professionals and companies on the numerous lives affected by Krabbe disease as well as helps provide a place of remembrance. At KrabbeConnect we never want to forget about any loved one diagnosed with Krabbe disease and gone before we could #curekrabbe.
We invite you to take a moment today and upload a picture of your hero impacted by Krabbe disease. If your hero is already a part of our webpage but is now a few years older, we would love for you to upload a new photo. The higher the resolution, the crisper the image and the better the photo will appear on the webpage. Uploaded photos of higher resolution may also be used in other educational media pieces as needed. Consent information is defined in our online form prior to uploading your hero’s photo.
Fill out this form to submit your Krabbe hero.
BONUS - All hero pictures are exhibited each year during the A Million Dreams Gala Hero Tribute video. Here is the 2021 Krabbe disease tribute video. Should you have any questions, please email us at info@krabbeconnect.org
Alessandro G.
Roma Italia
Alex T.
Eau Claire, WI
Alexander L.
Morgantown, WV
Angela A.
San Antonio, TX
Angela D.
Comayagua, Honduras
Angelita D.
Honduras
Anna Rose J.
Bracknell, UK
Anna T.
Beaver Dam, KY
Anniston B.
Lafayette, LA
Anthony C.
Brooklyn, NY
Anthony M.
Wyandotte, MI
Anthony S.
Millers Creek, NC
Aron Eli O.
Reykjavik, Iceland
Artëm D.
r.p.Sargatskoe Omskaja oblastʹ
Ashley C.
Sun Prairie, WI
Aubrey C.
Cuyahoga Falls, OH
Avery C.
Warwick, RI
Belle M.
Stillwater, MN
Brittany W.
Radcliff, KY
Bryan W.
Hodgenville, KY
Bryce C.
Indianapolis, IN
Cade H.
Calgary, AB
Casey M.
Ireland
Cassidy J.
Montevideo, MN
Christopher S.
Metolius, OR
Cloud K.
Bainbridge, GA
Collin C.
Wisconsin Rapids, WI
Dalton S.
Millers Creek, NC
Daniel H.
San Jose, CA
Darian H.
Humacao, Puerto Rico
David A.
Garner, NC
David B.
Akron, Ohio
Dawson F.
Franklin, VA
Delilah S.
Kent, UK
Dennis M.Ø
Norway
DJ O.
Havertown, PA
Duarte E.
Braga, Portugal
Dylan M.
Washington, IL
Elif C.
Istanbul TURKEY
Emmalynn A.
Neon Ky
Emmett B.
Harrisburg, NC
Emmett K.
Clear Lake, SD
Emmett M.
Beaverton, OR
Eva-Rose S.
Derby, United Kingdom
Evie Beth S.
North Yorkshire, UK
Ezra B.
St. Louis, MO
Gina R.
Cincinatti, OH
Ginevra A.
Alessandria, Italy
Giovanni M.
Lakewood, Oh
Grayson M.
Boise, ID
Grazia S.
Siracusa, Italy
Hasan M.
Melrose, MA
Hristo L.
Birmingham,UK
Jace P.
Portland, Mi
Jacksea T.
Grand Forks, ND
Jackson G.
Lawrenceville, GA
Jackson W.
Rhome, TX
Jasper M.
Columbus, OH
Jaxon S.
Galesburg, IL
Jayven R.
Bay St. Louis, MS
Jeramie E.
Janesville, WI
Jeremy T.
Eau Claire, WI
Jhyrve S.
Pittsburg, CA
Jia K.
Seoul, Republic of Korea
Jody V.
N. Liberty, IA
Joshua B.
New Milford, PA
Joshua C.
Cedar Rapids, IA
Julia B.
Ann Arbor, MI
Juni H.
Gothenburg, Sweden
Kenan W.
Chicago, IL
Kyran D.
Brisbane, Australia
Lana S.
North Riverside, IL
Laura C.
Cedar Rapids, IA
Leandra F.
Indiana
Lennon F.
Piketon, OH
Levi P.
Ontario, Canada
Liam H.
Chicago, IL
Lucas N.
Pensacola, FL
Mabry Kate W.
Powell, TX
Makayla P.
Burnsville, MN
Marcus G.
La Pryor, TX
Marcus M.
Wyandotte, MI
Maria E.
Barcelos, Portugal
Mariah G.
La Pryor, TX
Marshall W.
Dayton, OR
Martin S.
Exeter, UK
Mason L.
Selangor, Malaysia
Matthew S.
Clare, MI
Max B.
Phoenix, AZ
McKenna T.
Modesto, CA
Michael W.
Dayton, OR
Mila L.
Southaven, MS
Naomi H.
Simpsonville, SC
Nassiah J.
Chicago, IL
Nicholas B.
New Milford, PA
Nick R.
Cincinnati, OH
Nico B.
Rockford, Illinois Read Family Story
Nikola G.
Newport News, VA
Odin FW.
Johnson City, NY
Oliver P.
Surrey, UK
Owen W.
Powell, Tx
Parker Janelle G.
Tempe, Arizona
Patrick S.
Svizzera
Quinton N.
Des Plaines, IL
Rebekah F.
Western Cape, South Africa
Reesa S.
Scottsdale, AZ
Regann M.
Springfield, Mo
Reuben N.
Dunedin, New Zealand
Rocco W.
London, UK
Roman R.
Poole dorset, UK
Rowan S.
Nova Scotia, Canada
Sakina M.
Dawsonville GA
Sandrine D.
Montreal, Canada
Saylor S.
Richland MI
Scarlett M.
Pikeville, TN
Sophia S.
Kannapolis, NC
Sophie T.
Gateshead, UK
Sulaiman M.
Buford, GA
Sunny H.
Bayside, CA
Taiten B.
Eagle Mountain, UT
Thomas H.
Ayden, NC
Trevor L.
Baldwin City, KS
Tygh D.
Puryear, TN
Tymoteusz Mikołaj K.
Pław, Poland
Victoria B.
Hershey, PA
Vladimir D.
Comayagua, Honduras
William B.
Davenport, IA
Zander M.
Erie, PA