The KrabbeConnect Hero page was created for individuals living and no longer living with Krabbe disease. This page helps others to understand the impact of the disease, helps educate healthcare professionals and companies on the numerous lives affected by Krabbe disease as well as helps provide a place of remembrance. At KrabbeConnect we never want to forget about any loved one diagnosed with Krabbe disease and gone before we could #curekrabbe.
We invite you to take a moment today and upload a picture of your hero impacted by Krabbe disease. If your hero is already a part of our webpage but is now a few years older, we would love for you to upload a new photo. The higher the resolution, the crisper the image and the better the photo will appear on the webpage. Uploaded photos of higher resolution may also be used in other educational media pieces as needed. Consent information is defined in our online form prior to uploading your hero’s photo.
BONUS - All hero pictures are exhibited each year during the A Million Dreams Gala Hero Tribute video. Here is the 2021 Krabbe disease tribute video. Should you have any questions, please email us at firstname.lastname@example.org