KrabbeConnect offers a variety of opportunities for donations from special events, donor advised funds and #curekrabbe programs to support our vision and mission statements. Help us in making a difference in the lives of those affected by Krabbe disease by making a donation today!
General Donations for KC Programs
#curekrabbe Donations
KrabbeConnect exists entirely as a volunteer organization so rest assured your gift will be utilized to enhance the lives of Krabbe patients. Please consider a donation here allowing KrabbeConnect to select the #curekrabbe program that needs immediate attention. Your contribution will make a difference in the lives of those affected by Krabbe disease.
Special Events Donations
A Million Dreams Gala
We hope you join our annual "A Million Dreams" Gala to learn and connect with patients diagnosed with Krabbe disease. KrabbeConnect is truly thankful to support and provide services to those affected with Krabbe disease. Funds raised from this gala will go towards filling necessary gaps in research and initiating a patient assistance grant program which is an urgent need in the Krabbe disease community.
The Impact of Your Donation
| Amount | Impact | |
|---|---|---|
| $25 | A $25 donation helps KrabbeConnect send a newly diagnosed individual/family an informational package. Items included in the package include a notebook for writing down important medical details, a few pens, a couple of awareness bracelets, a small tote bag to carry necessary medical items, and vital resources to help navigate Krabbe disease. | |
| $50 | A $50 donation helps KrabbeConnect purchase a necessary comfort item for a individual. These comfort items are not covered by insurance such as a warming blanket because individuals with Krabbe disease struggle to regulate their temperature or a fingertip pulse oximeter to check oxygen levels. | |
| $100 | A $100 donation can help KrabbeConnect in many ways from acquiring positioning devices to aid rest, to providing gas funds to meet with a Krabbe disease expert out-of-state, or to help purchase a pair of adaptive shoes. | |
| $500 | A $500 donation can help KrabbeConnect ship gently used equipment such as standers, adaptive walking devices, and specialized mobility chairs to families in need. Adaptive equipment can be quite difficult and time-consuming to acquire. | |
| $1,000 | A $1000 donation can help KrabbeConnect cover a mortgage payment while an individual with Krabbe disease is admitted to the hospital for a long period of time or it can help support the KrabbeCURES engagement study, a versatile online system that securely collects and stores data for medical research. |
Learn about our Family Advised Funds
Family Advised Funds
Krabbe families utilized KrabbeConnect’s “Partner With Us” program to help aid developments in the Krabbe disease space. Donations received through each fund will go to support projects approved by the family related to KrabbeConnect’s mission and work.