Are you looking to help make a difference for patients and families living with Krabbe disease? KrabbeConnect wants to collaborate with you! Krabbe disease is rare, and underfunded at the government level; therefore, it’s vital we partner on fundraising efforts. KrabbeConnect will make the most of every dollar raised towards our vision: A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
Ways to Partner
1. Host a Community Fundraiser
For many, an individual diagnosed with a life-threatening condition, affects the community they live in. With this option, Host a Community Fundraiser, you gather a small committee of dedicated individuals and lead your own fundraising event. Select an event that’s suitable for you, the individual affected by Krabbe disease, and your community. There’s endless fundraising ideas on the internet from very simply, requiring little time and effort to very complex and time intensive.
KrabbeConnect’s Role:
- To energize and engage the community by utilizing all social media networks to advertise your fundraiser
- To save you time and resources, tax and accounting administration, by coordinating donations for the event.
- To develop a custom flyer for your fundraiser that can be printed or emailed and grabs the attention of your community.
2. Become a Corporate Sponsor
We rely on the generosity of the greater community to help us in the fight for better resources and treatment for those with Krabbe disease. KrabbeConnect is truly grateful for each sponsor’s passion for our mission and desire to work on behalf of those affected by this often-fatal disease. In order to create programs and resources that are sustainable, we must limit our activities to those that generate a significant impact and an appropriate fit for the organization mission.
Guidelines for Corporate Sponsor
As a Corporate Partner ofKrabbeConnect, your company, large or small, can receive national recognition of its support in bridging the gap between science and patient knowledge. Participating in a KrabbeConnect event as a Corporate Sponsor benefits your company and your employees. Use this opportunity to engage your employees by having them join or create a team, volunteer, and fundraise.
Benefits of a Corporate Sponsor include:
- Speaking opportunities at events
- Host a table at a KrabbeConnect event
- Media exposure