The 2021 Krabbe Translational Research Network Meeting Will Be Virtual
The Legacy of Angels Foundation (TLOAF) will be celebrating its 12th-year in February 2021. This foundation was co-founded by Paul and the-late Sue Rosenau, proud grandparents to Makayla Pike, diagnosed with Krabbe disease in 2001. The beloved grandparents had a yearning to push scientific developments forward for a disease that robbed their granddaughter of a healthy life upon her passing in 2003. In 2008, their dream became a reality. Paul and the-late Sue Rosenau were recipients of a gift; the winnings of a lottery on the fifth anniversary of Makayla’s passing, May 5th, 2008. This gift continues to fund the work at TLOAF to this day.
TLOAF, a small family driven no-profit 501 (c)(3) foundation has profoundly affected the progress in Krabbe disease. In reviewing their grants page, TLOAF has funded Krabbe disease grants in many areas included but not limited to newborn screening, neurodevelopment, chaperone therapy, toxicology studies, biomarker studies, and gene therapy. A remarkable portfolio driven by a small-town couple whose mission it is to help advance therapies for those diagnosed with Krabbe disease and Cystic Fibrosis, two rare diseases affecting their family genetics.
Thus, we believe its of importance to mention the upcoming Krabbe Translational Research Network meeting hosted by TLOAF. The foundation has announced that the meeting will be held virtually, March 17th-19th. Abstracts for virtual podium presentations are being accepted through January 15th, 2021. This meeting works to bring together all entities working in Krabbe disease, including the recent addition of a couple pharmaceutical companies.