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Connecting Patients and Research
“We make a living by what we get ... but we make a life by what we give." — Winston Churchill
KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264
(800) 800-5509 toll-free
Info@KrabbeConnect.org
A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
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Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.