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Current & Ongoing Events
![The Krabbe Family Warrior Meet-up at the ULF Conference The Krabbe Family Warrior Meet-up at the ULF Conference](https://krabbeconnect.org/wp-content/uploads/2024/03/Krabbe-Family-Meeting-2024-Square-Banner.jpg)
June 29, 2024
The Krabbe Family Warrior Meet-up at the ULF Conference
This family meet-up will feature Krabbe-specific scientific, advocacy, and family support sessions. This meeting is designed to empower patients and their families by providing information and tools to help navigate Krabbe disease. KrabbeConnect wants you to use this time to connect and learn from others walking in your shoes, hear from the medical and research […] Read More![4th Annual BrAvery for Avery Golf Tournament 4th Annual BrAvery for Avery Golf Tournament](https://krabbeconnect.org/wp-content/uploads/2024/05/2024-Bravery-for-Avery-Golf-Tournament-Square-Banner.webp)
August 18, 2024
4th Annual BrAvery for Avery Golf Tournament
Kevin and Lindsey Coupe are hosting their 4th annual golf tournament to benefit the BrAvery for Avery Fund, a family-advised fund held at KrabbeConnect in memory of their daughter, Avery Coupe. We need YOU to join us for this important event. With each drive, chip, and putt, we honor the bravery of Avery and all those battling Krabbe […] Read More![Ten Candles, Endless Hope: Tori’s Birthday Benefit to #curekrabbe Ten Candles, Endless Hope: Tori’s Birthday Benefit to #curekrabbe](https://krabbeconnect.org/wp-content/uploads/2024/02/10-Candles-Endless-Hopes-2024-Square-Banner.png)
Saturday, September 7, 2024
Ten Candles, Endless Hope: Tori’s Birthday Benefit to #curekrabbe
This event is new and it’s replacing our “A Million Dreams Gala.” Why? It’s important to KrabbeConnect to move things around the country giving other families the opportunity to witness the generosity of the community and to attend these special events. Welcome to the Ten Candles, Endless Hope event page, dedicated to Tori’s Birthday Benefit in support of the […] Read More![Anywhere Strides 5k Walk/Run to #curekrabbe! Anywhere Strides 5k Walk/Run to #curekrabbe!](https://krabbeconnect.org/wp-content/uploads/2024/05/2024-Anywhere-Strides-Square-Banner.webp)
October 5-12, 2024
Anywhere Strides 5k Walk/Run to #curekrabbe!
Join us for a meaningful journey towards a cure! Anywhere Strides invites you to lace up your sneakers and join our 5k walk or run, all in support to #curekrabbe. By participating in Anywhere Strides 5k, you’re not just taking steps or running miles – you’re making strides towards a cure for Krabbe disease. Your […] Read More![Be the Story — Krabbe Disease Newborn Screening Campaign Be the Story — Krabbe Disease Newborn Screening Campaign](https://krabbeconnect.org/wp-content/uploads/2022/11/State-Fact-Sheets_small-banner-e1672318437742.png)
ONGOING
Be the Story — Krabbe Disease Newborn Screening Campaign
Are you interested in being the face of our Krabbe disease newborn screening state fact sheets? We’re on a mission to help bring more education and awareness to Krabbe disease newborn screening. All 50 states must be testing for this condition now to prevent a delayed diagnosis, especially in the most severe forms. You can be the story to help change Krabbe disease. See which states across the USA do not have a Krabbe disease fact sheet. If your state is not listed, we invite you to share your story. Read More![KrabbeConnect Wine Collection KrabbeConnect Wine Collection](https://krabbeconnect.org/wp-content/uploads/2023/11/Wine-Fundraiser-Small-Banner.jpg)
Ongoing