OUR MISSION
KrabbeConnect's mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state of the art research by bridging the gap between science and patient knowledge.
OUR VISION
A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
OUR MULTICENTER APPROACH
KrabbeConnect is committed to pioneering a patient-centered care model and strengthening groundbreaking research by engaging the patients and caregivers with the Krabbe research community, to ensure the needs of Krabbe patients are being voiced. This multi-center collaborative cause will bring improved science, institute data sharing, establish standards of care for all courses of treatment, provide educational videos and continuing education courses, develop an industry-standard patient registry, and be a resource for clinical trial opportunities.
A Million Dreams Gala is KrabbeConnect’s premium fundraising event. Leaders in the lysosomal disease space, fellows in the medical community, influential gene therapy companies, friends of the foundation, and patients living with the disease will be in attendance. Last year, YOU surpassed our $60,000 goal raising $85,000!
In order to keep our community safe and healthy amidst the uncertainty of COVID-19, we have decided to go with a VIRTUAL platform. Anyone from around the world can participate. Join us on Saturday, October 10th, 2020 to learn, to connect with patients living with the disease, and to give if you’re financial able to.
KrabbeConnect Sponsors
