Patient Care Center: How to Build a Medical Care Team
Original Air Date: May 6th, 2020
A 1-hour presentation with guest speaker, Dawn Laney. Dawn juggles many roles and responsibilities at Emory University: Assistant Professor, Genetics Counselor, Director of the Emory Genetic Clinical Trials Center, Program Leader of Emory’s Lysosomal storage disorders comprise a group of ~50 metabolic disorders that result from a missing, deficient or lack of a specific enzyme. Center, and member of the Emory Biomedical IRB Committee. Dawn is a long-time advocate of patient empowerment and strongly urges rare disease patients and/or caregivers to organize a care team to ensure the exchange of information amongst different medical care providers remains fluid and consistent.