KrabbeConnect

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Past Events

Participate in an event and help support Krabbe research and patient support!

Rare Disease Day - KrabbeConnect
2021 - February 28th

Rare Disease Day

Each year, many organizations across the world are involved in efforts to advance treatments, raise awareness, and bring resources to those living with a rare disease. In 2008, the European Organization for Rare Disease (EURORDIS), successfully implemented the last day of February as Rare Disease Day. At KrabbeConnect, we want to shine a light on Rare Disease Day as our community works to #curekrabbe. Learn how you can participate in this important awareness day, whether you have been impacted by Krabbe disease or one of the other 7,000 identified rare diseases, we encourage you to join us in our theme this year on what it means to #BeRare.

Click Here to Learn More
Super Bowl_2019
2021 - February 7th

Super Bowl Squares Challenge

Super Bowl squares, also known as football squares, are often a fun staple of Super Bowl parties everywhere. In 2018 we initiated this fundraiser as a fun way to drive excitement about our mission at KrabbeConnect which is, to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state-of-the-art research by bridging the gap between science and patient knowledge.

Click Here to Learn More
PFDD Graphic_Small
2020 - October 29th

Externally-Led Patient Focused Drug Development Meeting for Krabbe disease

Please join us for a once in a life-time opportunity to come together to help #curekrabbe. KrabbeConnect initiated an Externally-Led Patient Focused Drug Development (EL-PFDD) meeting for the Krabbe disease community. This meeting, coordinated and facilitated by the National Organization for Rare Disorders, will be conducted virtually on Thursday, October 29th, 2020 from 12:30-4:30 pm EST Detailed information on registration, sponsorship and speaking opportunities can be found here.

Click Here to Learn More
KrabbeConnect_FacebookCover_R1[1]
Sweatshirt - #curekrabbe
2020 - September

#curekrabbe Campaign for Leukodystrophy Awareness Month

September is leukodystrophy awareness month.  A leukodystrophy is a type of disease that causes degeneration of the myelin, or "white matter" of the brain.  The word leukodystrophy comes from the Greek roots-leuko meaning white, dys, standing for lack of, and trophy, meaning growth.  Every individual requires healthy production of myelin for speed and accuracy of nerve impulses within the brain.  Without a healthy myelin sheath, your nerves can’t send and receive signals properly.  

Krabbe disease is one specific type of leukodystrophy.  Today, there are more than 50 different types of leukodystrophies identified.  Some more commonly known leukodystrophies are Metachromatic leukodystrophy (MLD), Niemann-Pick disease, Canavan disease, Vanishing White Matter, Alexander disease, and Krabbe disease.

This month, KrabbeConnect has organized 3 different ways you can participate in leukodystrophy awareness month:

  1. Download our social media toolkit to educate your cohort of followers and use the hashtag #krabbedisease2020
  2. Purchase a “Together We Can #curekrabbe” sweatshirt from Bonfire https://www.bonfire.com/leukodystrophyawareness/ to support educational resources for patient and caregivers diagnosed with Krabbe disease.  
  3. Consider making a tax-deductible donation to help our #curekrabbe programs, simply click on the donate tab at the top of this page.  

No matter how you decide to participate in leukodystrophy awareness month, know you are making a tremendous difference and we are so very thankful for your efforts.

2020-04-27 TShirt Fundraiser - KrabbeConnect
2020 May 1 - 18

#CureKrabbe T-Shirt Team Fundraiser

Join us for our 1st ever #curekrabbe T-Shirt Team Fundraiser. It's fun, it's easy, and there's no training required. We will kick off this fundraiser on May 1st, 2020 and it will run through Monday, May 18th, 2020. You and your team will have 18 days to sell as many t-shirts as you can. Lots of great prizes are up for grabs so don't waste any time. Act now to kick your fundraising efforts into high gear, whether you have a direct connection to the disease or not, everyone is invited to make a difference!

Click Here to Learn More
Child's Hand Photo
2020 - January 26th -31st

Children’s Week of Florida

KrabbeConnect was invited to participate in Children’s week by Lennon Foster’s family. Children’s Week is the only annual event held in the state of Florida that celebrates and honors its commitment to children and advocates. This event was once known as Children’s Day, but the decision was made by the Florida Children’s Forum to change the event to Children’s Week to honor the multiple organizations who collaborate on children’s issues at the capital building in Tallahassee.

Children’s Week begins with the, “Celebration of Hands” event on Sunday, January 26th, 2020 at 4:00 pm EST. Tens of thousands of “hand art” will be hung throughout the Capitol Rotunda Sunday Jan 26th-Friday, January 31st, 2020 creating an amazing display of children’s art. Hanging of the Hands provides a visual that each set of hands represents a child who is impacted by the policy decisions made by the legislature. This event is key to the success of Children’s Week and a great tribute to the Forum’s initial vision and collaborative spirit.

KrabbeConnect invites you to participate in the, “Celebration of the Hands.” We would like to collect as many hands as possible impacted by Krabbe disease to raise awareness about this life-threatening genetic condition. Download the flyer below to learn how you can participate!

**Please Note: Handprints must be received no later than Tuesday, January 21st, 2020

Celebration of the Hands Info and Flyer
KrabbeConnect Outline Handprint

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Contact Us

KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264

(651) 252-4117
Info@KrabbeConnect.org

OUR VISION

A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.

Newly Diagnosed

  • Treatment and Resource Maps
  • Understanding Krabbe Disease
  • Infantile / Late-Onset
  • Testing, Treatment and Clinical Care
  • Transplant for Krabbe Disease Therapy

Patients & Caregivers

  • Connect with a Clinical Expert
  • Genetic Counselor/Care Team Knowledge
  • Advocating for Your Patient
  • Connect with Kevin

Research & Education

  • Research, Studies & Trials
  • Clinical Trial
  • Brain and Tissue Bank
  • Listen and Learn Webinars
  • KrabbeConnect Library
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Pennsylvania (Opt-In)

Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.

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