KrabbeConnect

Connecting Patients and Research

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Recognize Your Heroes

To submit a photo of your hero, please provide:

  1. A high resolution image, if possible
  2. The first name you’d like to display and initial of last name
  3. The city and state of pictured individual
  4. Complete Permission to Use Photograph form below
  • I grant KrabbeConnect the right to use the attached photograph of my child in connection with the above identified subject. I authorize KrabbeConnect, it’s delegates and agents to copyright, use and publish the same photo in print and/or electronically.

    I agree that KrabbeConnect may use the attached photography of my child with or without my name and for any lawful purpose, including for example such purposes as publicity, illustration, advertising, and Web content.

    Last sentence should read: By typing my name in the fields below I have read and agree to the release of my child’s photo.

  • For Our Records Only, will not be displayed publicly.
  • For Our Records Only, will not be displayed publicly.
  • For Our Records Only, will not be displayed publicly.
  • For Our Records Only, will not be displayed publicly.
  • Your Hero

  • Please upload a photo in as high of resolution as possible. Files must be JPG or PNG format. Max file size is 5MB.
    Accepted file types: jpg, png, jpeg.
  • This field is for validation purposes and should be left unchanged.

Become a Partner

Are you looking to help make a difference for patients and families living with Krabbe disease?  KrabbeConnect wants to collaborate with you! LEARN MORE

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Contact Us

KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264

(651) 252-4117
Info@KrabbeConnect.org

OUR VISION

A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.

Newly Diagnosed

  • Treatment and Resource Maps
  • Understanding Krabbe Disease
  • Infantile / Late-Onset
  • Testing, Treatment and Clinical Care
  • Transplant for Krabbe Disease Therapy

Patients & Caregivers

  • Connect with a Clinical Expert
  • Genetic Counselor/Care Team Knowledge
  • Advocating for Your Patient
  • Connect with Kevin

Research & Education

  • Research, Studies & Trials
  • Clinical Trial
  • Brain and Tissue Bank
  • Listen and Learn Webinars
  • KrabbeConnect Library
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Pennsylvania (Opt-In)

Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.

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