Krabbe Newborn Screening State-by-State Fact Sheets

This page represents State-by-State Fact sheets, family stories, and information about Newborn Screening for Krabbe disease. We invite you to use any of the NBS State Fact Sheets to help educate and advocate for the addition of Krabbe disease onto a state’s Newborn Screening Test panel.  Currently, there are only 11 states that screen for Krabbe disease at birth.

At KrabbeConnect, we understand that it takes a village of advocates, partners, and pertinent scientific information to gain Newborn Screening approval for a new condition.  Thus, we invite you to email us at info@krabbeconnect.org should you need assistance with your Newborn Screening efforts.  We can assist in the nomination of Krabbe disease to your state’s NBS panel.  We can also attend (virtually) state NBS meetings and make critical public statements on the importance of early screening for this disease.