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Contact Us

KrabbeConnect is a group of passionate individuals who want to hear from you!  We are dedicated to connecting patients, caregivers, healthcare providers, and researchers with the support and resources needed to optimize health, wellness, and advances in care.  Krabbe disease inhibits quality of life; we exist to help put a stop to that!

Please select from the following menu below so we can be sure to have the right person address your needs:

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Krabbe Connect
P.O. Box 264
Rosemount, MN 55068-0264
(651) 252-4117
Info@KrabbeConnect.org

 

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Are you looking to help make a difference for patients and families living with Krabbe disease?  KrabbeConnect wants to collaborate with you! LEARN MORE

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Contact Us

KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264

(651) 252-4117
Info@KrabbeConnect.org

OUR VISION

A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.

Newly Diagnosed

  • Treatment and Resource Maps
  • Understanding Krabbe Disease
  • Infantile / Late-Onset
  • Testing, Treatment and Clinical Care
  • Transplant for Krabbe Disease Therapy

Patients & Caregivers

  • Connect with a Clinical Expert
  • Genetic Counselor/Care Team Knowledge
  • Advocating for Your Patient
  • Connect with Kevin

Research & Education

  • Research, Studies & Trials
  • Clinical Trial
  • Brain and Tissue Bank
  • Listen and Learn Webinars
  • KrabbeConnect Library
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Pennsylvania (Opt-In)

Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.

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