The Leukodystrophy Newborn Screening Action Network is a coalition of leukodystrophy patient advocates dedicated to championing the cause of newborn screening for leukodystrophies and lysosomal storage disorders.Here is a youtube video we would like on this page: You can add this language above the video link: Take a moment to watch this video on all of the great work the LDNBS is doing https://youtu.be/
For more information about the LDNBS visit: ldnbs.org