June 1, 2025
KrabbeConnect is excited to introduce a new and meaningful way to bring our community together—one that raises awareness and vital funds to support families affected by Krabbe disease. We are proud to announce the Inaugural Swing for Saylor Golf Tournament, set to take place on Sunday, June 1st, 2025, at Emerald Greens Golf Course in Hastings, MN
We look forward to seeing you there! Click here to learn more about companies interested in becoming a sponsor.
Event Details
Date: Sunday, June 1st, 2025
Time: 9:00 am shot gun start
Check-In: 7:30 am – 8:45 am
Location: Emerald Greens Golf Course, Hastings, MN
Ticket Costs
- Dinner and Awards Reception – $30
- Individual Golf Ticket with Dinner – $130
- Foursome Golf Ticket with Dinner – $520
How to Purchase Tickets
All purchases much be made through Handbid, a mobile event application to help ensure attendees have a great experience. Purchase your tickets here today.
About the Golf Event
This special event is the brainchild of Kelly and Beau Onischuk, whose daughter, Saylor, was diagnosed with Krabbe disease just two weeks before she tragically passed away in their arms. Saylor’s journey was filled with unimaginable challenges, and through this tournament, Kelly and Beau are honoring her memory by raising awareness for this rare and devastating condition that affects children and their families in profound ways.
About Krabbe Disease
Krabbe disease is a severe neurological disorder that causes progressive damage to the nervous systemThe nervous system of the body is made up of the Central Nervous System (CNS) and the Peripheral Nervous System (PNS)., often leading to death in early childhood. The funds raised from this event will go directly to providing education, resources, and access to specialized care for those diagnosed with Krabbe disease—offering hope to families navigating this heart-wrenching condition. To learn more about the journey of Krabbe disease, we invite you to watch this video.
Frequently Asked Questions
Why should I consider participating?
By joining us for the Swing for Saylor Golf Tournament, you will not only enjoy a day on the course but also play a part in advancing Krabbe disease awareness and supporting those in need. Your participation will help us make a meaningful impact on the lives of children and families living with Krabbe. We invite you to register today and show your support for Saylor’s legacy, as well as the thousands of children and families fighting Krabbe disease. Together, we can bring about real change and make a lasting difference.
How can companies sponsor this event?
We would love companies to consider becoming a sponsor for this event. Your support will not only make a difference in the lives of those affected by Krabbe disease but also show your commitment to promoting the health and well-being of children. We invite you to review our sponsorship packet here for detailed information about each sponsorship level and the benefits associated with them.
I have a question about the event, who so I contact?
Thank you so much for your interest in this event, please email us your questions at info@krabbeconnect.org.