Supporting Families on Their Krabbe Journey
At Ella’s Welcome Wish, we understand how overwhelming it can be for families when they receive the news that their loved-one has been diagnosed with Krabbe disease. This program was organized to offer a warm welcome during one of the most difficult times in a family’s life.
At Ella’s Welcome Wish, we want every family to know they are not alone. You have support, you have resources, and you have a community that cares. Together, we can help you navigate this journey one step at a time.
What’s Included in the Ella’s Welcome Wish Packet?
Every family who receives a diagnosis of Krabbe disease will receive a packet designed to help them feel supported and informed. Our Welcome Packet contains the following items:
Notebook & Pen
A simple yet powerful tool for organizing thoughts, keeping track of appointments, recording questions for doctors, and documenting your family’s journey. This notebook is for you to use as a safe space for everything you want to remember and reflect on.
Chapstick
A small but thoughtful item, our ChapStick is there to provide some comfort during those long hospital visits or while navigating the emotional toll of a new diagnosis. It’s the little things that can make a big difference.
Reusable Bag
A practical, yet durable bag is perfect for carrying medical documents, appointments, or any items you need while running errands or visiting specialists. It’s a gentle reminder that even on the busiest days, you can carry hope with you.
Blanket
The blanket is a symbol of warmth and comfort. It’s there to provide some physical warmth during hospital stays or moments of rest at home, but it’s also a reminder that your family is surrounded by a community of support and care.
Information Guide
The most important part of our Welcome Packet is the guide that provides clear, concise, and useful information to help families navigate Krabbe disease. This guide is designed to empower families with knowledge and provide the support they need during this challenging time.
If your child has recently been diagnosed with Krabbe disease, please reach out to us to receive Ella’s Welcome Wish Package. Simply fill out the form below, and we will send your packet to your family as soon as possible.
Please note that we will make every effort to ship internationally, there may be instances where it is not feasible due to shipping restrictions, customs regulations, or logistical challenges. We appreciate your understanding.
Request Your Free Ella’s Welcome Wish Packet
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