Specialized and supportive care for individuals with a serious illness with the goal of offering an improved quality of life, not only for the patient but the family as well.
Connecting Patients and Research
Specialized and supportive care for individuals with a serious illness with the goal of offering an improved quality of life, not only for the patient but the family as well.
KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264
(800) 800-5509 toll-free
Info@KrabbeConnect.org
A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.