Myelin is an essential material your body uses to surround and protect nerve fibers.
Connecting Patients and Research
Myelin is an essential material your body uses to surround and protect nerve fibers.
KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264
(800) 800-5509 toll-free
Info@KrabbeConnect.org
A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.