KrabbeConnect

Connecting Patients and Research

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  • Patients & Caregivers
    • Understanding Krabbe Disease
    • Infantile / Late-Onset
    • Testing, Treatment and Clinical Care
    • Connect with a Clinical Expert
    • Connect with a Family
  • Research, Studies & Trials
    • Experts in Research
    • Krabbe Clinical Trials
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    • Our Heroes
    • Events
    • Partner with KrabbeConnect
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    • Brain and Tissue Bank
    • Newborn Screening
    • Transplant 101
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    • Glossary of Terms
  • About Us
    • Mission & Vision
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Globoid Cell Leukodystrophy

May 15, 2018 Russell Weller

Another name for Krabbe disease, a rare and usually fatal disorder of the nervous system.

Our Vision

A day in which each patient receives early diagnosis, state of the art care, and lives a life free of disease.

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Contact Us

Krabbe Connect
P.O. Box 264
Rosemount, MN 55068-0264

(651) 252-4117
Info@KrabbeConnect.org

OUR VISION

A day in which each patient receives early diagnosis, state of the art care, and lives a life free of disease.

Patients & Caregivers

  • Understanding Krabbe Disease
  • Infantile / Late-Onset
  • Testing, Treatment and Clinical Care
  • Connect with a Clinical Expert
  • Connect with a Family

Research, Studies & Trials

  • Experts in Research
  • Krabbe Clinical Trials

Resources

  • Brain and Tissue Bank
  • Newborn Screening
  • Transplant 101
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Pennsylvania (Opt-In)

Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.

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