Another name for Krabbe disease, a rare and usually fatal disorder of the nervous system.
Connecting Patients and Research
Liam H.
Chicago, IL
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Makayla P.
Burnsville, MN
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Nick R.
Cincinnati, OH
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Avery C.
Warwick, RI
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Angela A.
San Antonio, TX
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Duarte E.
Braga, Portugal
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Alex T.
Eau Claire, WI
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Anthony C.
Brooklyn, NY
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Maria E.
Barcelos, Portugal
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Rocco W.
London, UK
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Another name for Krabbe disease, a rare and usually fatal disorder of the nervous system.
Krabbe Connect
P.O. Box 264
Rosemount, MN 55068-0264
(651) 252-4117
Info@KrabbeConnect.org
A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.