Connecting Patients and Research
Tymoteusz Mikołaj K.
Kian and Luis K.
May 15, 2018 Amy Simmonds
P.O. Box 264
Rosemount, MN 55068-0264
A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.