KrabbeConnect

Connecting Patients and Research

Drive research forward! Sign up for KrabbeCURES
Menu
  • Krabbe Disease
    • Newly Diagnosed
      • * Treatment and Resource Maps *
      • Understanding Krabbe Disease
      • Infantile / Late-Onset
      • Diagnosis, Treatment and Clinical Care
      • Transplant 101
    • Patients & Caregivers
      • Connect with a Clinical Expert
      • Genetic Counselor/Care Team Knowledge
      • Advocating for Your Patient
      • Connect with Kevin
    • Newborn Screening
  • Research, Studies & Trials
    • Research, Studies, Trials
      • Experts in Research
      • Krabbe Clinical Trials
      • Science Spotlight
      • Brain and Tissue Banking
    • KrabbeConnect Research
      • Posters
      • Abstracts
  • Get Involved
    • #curekrabbe Projects
      • KrabbeCURES
    • Events
      • Current/Upcoming Events
      • Ongoing Awareness Campaigns
      • Past Events
    • Community Engagement
      • Our Heroes
      • Partner with Us-Family Advised Fund
  • Education
    • Listen and Learn Webinars
    • KrabbeConnect Library
    • Glossary of Terms
  • #curekrabbe Shop
  • Donate
  • About Us
    • About KrabbeConnect
      • Mission & Vision
      • Board Members
      • Scientific Advisory Council
    • Other Information
      • Our Affiliations
      • Bylaws & IRS Forms
      • Contact Us
      

KrabbeConnect, a public non-profit 501 (c) (3) organization, is solely a volunteer board, ensuring that every dollar goes into providing meaning and hope to everyone impacted by Krabbe disease. Your gift is powerful! Whatever amount you donate will help to make the life of a Krabbe patient better.

  • #CureKrabbe Donation

  • All donations received through #curekrabbe are used to support all of our programs at KrabbeConnect.

  • If you are donating as part of a current #CureKrabbe fundraiser please provide the name of the fundraiser and/or Team Name your donation is associated with Example: T-Shirt fundraiser, Team Krabbe
  • Is This a One-Time or Ongoing Donation?

  • $0.00
  • Your Contact Information

  • American Express
    Discover
    MasterCard
    Visa
     
  • This field is for validation purposes and should be left unchanged.

Join Our Mailing List

  • This field is for validation purposes and should be left unchanged.

Contact Us

KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264

(651) 252-4117
Info@KrabbeConnect.org

OUR VISION

A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.

Newly Diagnosed

  • Treatment and Resource Maps
  • Understanding Krabbe Disease
  • Infantile / Late-Onset
  • Testing, Treatment and Clinical Care
  • Transplant for Krabbe Disease Therapy

Patients & Caregivers

  • Connect with a Clinical Expert
  • Genetic Counselor/Care Team Knowledge
  • Advocating for Your Patient
  • Connect with Kevin

Research & Education

  • Research, Studies & Trials
  • Clinical Trial
  • Brain and Tissue Bank
  • Listen and Learn Webinars
  • KrabbeConnect Library
©2021 KrabbeConnect. All Rights Reserved. Website by Rokkit Marketing.
Privacy Policy | Terms & Conditions

Copyright © 2021 · Genesis Framework · WordPress · Log in

Pennsylvania (Opt-In)

Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.

Make a Donation