Connecting Patients and Research
KrabbeConnect, a public non-profit 501 (c) (3) organization, is solely a volunteer board, ensuring that every dollar goes into providing meaning and hope to everyone impacted by Krabbe disease. Your gift is powerful! Whatever amount you donate will help to make the life of a Krabbe patient better.
KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264
(651) 252-4117
(800) 800-5509 toll-free
Info@KrabbeConnect.org
A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.