KrabbeConnect Holiday Grant Program

As the holiday season approaches, we understand that it can be a time of both joy and challenge for families affected by Krabbe disease. We believe in the power of community, support, and sharing love during this special time.

We are excited for the second year of the “Krabbe Family Holiday Grant Program,” an initiative designed to provide financial assistance to families navigating the challenges and financial burdens of Krabbe disease during the holiday season.

Program Highlights

We are offering grants to help ease the financial burden of the holidays. These grants can be used for holiday-related expenses, such as gifts, decorations, travel, or special meals.

If you can answer yes to the below statements, we invite you to complete the application:

You currently care for an individual with Krabbe disease
Your loved one lost their battle with Krabbe disease in 2023
Provide proof of Krabbe disease diagnosis unless your loved one is on the KrabbeConnect Heroes page
You and your loved one with Krabbe disease live in the United States
Complete the application by November 22, 2023

Apply to the Holiday Grant Program

To apply for the Krabbe Family Holiday Grant, please fill out our simple application form. We want to learn more about your family’s unique situation. Please know we will do our best to accommodate each application however, if we have more applications than funding, priority will be given to first-time applicants to the Krabbe Family Holiday Grant Program.

"*" indicates required fields

Caregiver/Guardian Information

Is your patient a KrabbeConnect Hero?*

Yes

Learn more about KrabbeConnect Heroes.

This program requires the patient to be a registered KrabbeConnect Hero – Sign Up and then return to this page to continue your application.

Name of parent and/or caregiver*

First Last

Name of another parent and/or caregiver

First Last

Patient Information

Name of patient with Krabbe disease*

First Last

Primary residence of patient*

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

Date of Birth of Patient with Krabbe disease*

Transplanted?*

Does patient live with caregiver/guardian at least 50% of the time?*

Contact Information

Name of person to contact

First Last

Phone number of contact

Email address for contact*

Other

Tell us briefly, the financial impact of Krabbe disease on your family this past year.*

If you are awarded a holiday grant, please tell us how this will ease your financial burden during the holidays.*

Are you willing to share a picture of the patient?*

Yes

Upload Picture*

Accepted file types: jpg, png, pdf, Max. file size: 50 MB.

Informed Consent

Photography, Video, Audio Recordings

I (the undersigned individual) hereby grant full permission to KrabbeConnect and its employees, legal representatives, agents, representatives, successors, assignees and assigns (collectively, the “Authorized Parties”) to take my or my minor child(ren)’s photograph, videoclip or sound recording and to use or reproduce such items, as well as my or my minor child’s name and any other information provided by me about me or my minor child(ren) (collectively referred to as the “Materials”) for any purpose in the Authorized Parties’ sole and exclusive discretion. I represent that I am 18 years of age or older. I understand that the Authorized Parties may adapt, modify, reproduce, distribute, publish, display and create derivative works of the Materials and that the Authorized Parties have no obligation to compensate me in any way for any use of the Materials. I understand and agree that the Authorized Parties are and will be the exclusive owner of all right, title and interest, including copyright, in works of authorship which they create and which incorporate the Materials. I expressly release the Authorized Parties from any and all claims which I have or may have in the future for invasion of privacy or any other cause of action arising out of the uses of the Materials herein granted, even if the usage of the Materials is objectionable to me.

I represent that if this Informed Consent relates to my minor child(ren), I am the parent or legal guardian of the below-named minor child(ren).

Name of Minor Child(ren) (if applicable)

Name*

First Last

Signature*

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Yes! Please add me to your emailing list to receive occasional updates about new Krabbe research and new website content.

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Phone

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KrabbeConnect Holiday Grant Program

Program Highlights

Apply to the Holiday Grant Program

Caregiver/Guardian Information

Patient Information

Contact Information

Other

Informed Consent

Contact Us

OUR VISION

Newly Diagnosed

Patients & Caregivers

Research & Education

Program Highlights

Apply to the Holiday Grant Program

Caregiver/Guardian Information

Patient Information

Contact Information

Other

Informed Consent

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Contact Us

OUR VISION

Newly Diagnosed

Patients & Caregivers

Research & Education