Leukodystrophy Awareness Month
September is Leukodystrophy Awareness Month and this year Neurogene is proud to sponsor KrabbeConnect’s Leukodystrophy Awareness Campaign to help support families directly impacted by Krabbe disease. “Just Like Me, Too!”, Anne Rugari’s newest publication will be sent FREE of charge to all families who have had a patient diagnosed with Krabbe disease. The book was inspired by Gina Rugari, who was born with Krabbe and received a transplant as a newborn. The book is beautifully illustrated by Gina Rugari which showcases her life through her artwork.