2021 - September 24th
A Million Dreams Gala
Join us for our 3rd annual "A Million Dreams” Gala on Friday, September 24th, 2021! This premium event is fun, educational, and gives you a chance to party with a purpose. We will be virtual for this event again to ensure the health and safety of our immune-compromised community. However, we do encourage gala participants across the world to conduct small watch parties to drive excitement, propel disease awareness, and aid financial momentum to ensure KrabbeConnect’s programs and support services can remain strong. Guest near and afar will have the opportunity to witnesses a program full of inspiration and promise as our community works together to help patients with Krabbe disease live their best life. Take a moment now to mark your calendars because this event is going to be grand!
2021 - August
Leukodystrophy Awareness Month
September is Leukodystrophy Awareness Month and this year Neurogene is proud to sponsor KrabbeConnect’s Leukodystrophy Awareness Campaign to help support families directly impacted by Krabbe disease. “Just Like Me, Too!”, Anne Rugari’s newest publication will be sent FREE of charge to all families who have had a patient diagnosed with Krabbe disease. The book was inspired by Gina Rugari, who was born with Krabbe and received a transplant as a newborn. The book is beautifully illustrated by Gina Rugari which showcases her life through her artwork.