2021 - February 7
Super Bowl Squares Challenge
Super Bowl squares, also known as football squares, are often a fun staple of Super Bowl parties everywhere. In 2018 we initiated this fundraiser as a fun way to drive excitement about our mission at KrabbeConnect which is, to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state-of-the-art research by bridging the gap between science and patient knowledge.
2020 - October 10th
A Million Dreams Gala
Join us for our 2nd annual "A Million Dreams” Gala! This premium event is fun, educational, and gives you a chance to party with a purpose. This year’s gala will look a bit different because we’re going VIRTUAL. This means anyone from around the world can attend right from the comfort of their home.
Don’t miss your chance to connect with the leaders of KrabbeConnect, Stacy Pike-Langenfeld and Anne Rugari, as well as a few of the principal investigators working to advance curative therapies for Krabbe disease. You will learn about KrabbeConnect’s goals, hear first-hand from patients living with the disease, and you will be entertained by the evening’s activities. Registration is free! Please, join us online on October 10th, 2020.
2020 - October 29th
Externally-Led Patient Focused Drug Development Meeting for Krabbe disease
Please join us for a once in a life-time opportunity to come together to help #curekrabbe. KrabbeConnect initiated an Externally-Led Patient Focused Drug Development (EL-PFDD) meeting for the Krabbe disease community. This meeting, coordinated and facilitated by the National Organization for Rare Disorders, will be conducted virtually on Thursday, October 29th, 2020 from 12:30-4:30 pm EST Detailed information on registration, sponsorship and speaking opportunities can be found here.