Leukodystrophy and Newborn Screening Month
September is Leukodystrophy and Newborn Screening Awareness Month! There are over 50 identified Leukodystrophies with Krabbe being one of them. Newborn Screening is a test done within the first 24-48 hours after a baby is born and can detect threatening conditions. Krabbe disease is currently only being screened in 10 states. To learn more about newborn screening and the Leukodystrophies and how KrabbeConnect is creating awareness, click on the button below!
October 1 - November 10, 2022
Holiday Grant Program
When you’re navigating a rare disease, the holidays can be financially cumbersome for patients and caregivers. KrabbeConnect strives to help ease this holiday stress by providing financial relief to those in need.
If you or someone you know has been diagnosed with Krabbe disease and could benefit from a holiday grant, we invite you to apply. Applications are accepted from October 1st through November 10th, 2022.
November 15 - December 31, 2022
Year-End Annual Campaign
KrabbeConnect Year-End Annual Campaign will run November 15th, 2022-December 31st, 2022.
November 29, 2022
Giving Tuesday is November 29th, 2022. Thank you for remembering KrabbeConnect on this national day of giving.