2021 - May 15 (Registration Opens)
#curekrabbe Summer Challenge
Are you up for a challenge this summer? Our community of patients are challenged each day due to their Krabbe disease diagnosis. KrabbeConnect works to help families with the challenges of Krabbe disease by advancing research, providing family support, enhancing education, and raising awareness. KrabbeConnect believes in working together quickly to help assure a better life for Krabbe disease patients yet, we cannot continue our work without your help! Please join us today to help improve the health of those living with Krabbe disease.
2021 - June 26
Virtual #curekrabbe Family Meeting
We’re thrilled to offer a half day meeting to keep patients and caregivers abreast of important information, new programs and resources, industry updates, and valuable projects. At KrabbeConnect, we continue to work to reach a day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
2021 - September 24th
A Million Dreams Gala
Join us for our 3rd annual "A Million Dreams” Gala! This premium event is fun, educational, and gives you a chance to party with a purpose. At this time, we are planning for an in-person event, however, please know that the gala committee will remain flexible in the overall design to ensure the health and safety of this community.
For now, we encourage you to take a moment to block Friday, September 24th, 2021 on your calendar. You simply don’t want to miss your chance to connect with the leaders of KrabbeConnect, Stacy Pike-Langenfeld and Anne Rugari, patient and caregivers directly impacted by Krabbe disease, important leaders advancing curative therapies, and more! Furthermore, this fundraiser is a great way for our community to celebrate the successes over the past year, and participate in a worthy cause to help #curekrabbe.