Current & Ongoing Events
August 23, 2025
Bloom for a Cure: A Family-Friendly Event at Hershey Gardens
Join us for a heartwarming and joyful evening at the beautiful Hershey Gardens as we unite to raise awareness and vital funds for Krabbe disease research. This special event brings families, friends, and community members together in support of a meaningful cause — helping children and families affected by this rare and life-threatening condition. One […] Read More
August 23, 2025
Connor’s Kure for Krabbe
Join us for Connor’s Kure for Krabbe, a heartfelt fundraising dinner event held at the stunning Coeur d’Alene Resort overlooking the crystal waters of Lake Coeur d’Alene in Coeur d’Alene, Idaho. This special evening is dedicated to honoring the life of Connor, a brave little boy who courageously fought Krabbe disease before sadly losing his […] Read More
Ongoing
See’s Candies to Help #curekrabbe
Sweeten hearts and change lives! Join Krabbeconnect’s Year-Round Candy Drive. Your support will help satisfy sweet cravings and fuel research for those affected by Krabbe disease. This is a great way to send a gift to others while making a difference with your purchase! Participation is simple. Here’s how it works: You can ship […] Read More
ONGOING
Be the Story — Krabbe Disease Newborn Screening Campaign
Are you interested in being the face of our Krabbe disease newborn screening state fact sheets? We’re on a mission to help bring more education and awareness to Krabbe disease newborn screening. All 50 states must be testing for this condition now to prevent a delayed diagnosis, especially in the most severe forms. You can be the story to help change Krabbe disease. See which states across the USA do not have a Krabbe disease fact sheet. If your state is not listed, we invite you to share your story. Read More
Ongoing