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KrabbeConnect

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#CureKrabbe Social Media Toolkit

Educate Your Cohort of Followers by Sharing

Help us raise awareness about Krabbe disease! We’ve put together a toolkit with images that you can share on your social media channels. Easily download each piece below. Remember to use hashtag #curekrabbe and #krabbedisease2020!

Social Media Cover Photos:

Facebook Cover Photo

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Twitter Cover Photo

KrabbeConnect_TwitterCover_R1[1]

Profile Picture Frame:

Together we can #curekrabbe - SQUARE

KrabbeConnect_FacebookProfile_R2
Apply to Facebook Profile Photo

Together we can #curekrabbe - CIRCLE

KrabbeConnect_FacebookProfile_R2
Apply to Facebook Profile Photo

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Contact Us

KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264

(800) 800-5509 toll-free
Info@KrabbeConnect.org

OUR VISION

A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.

Newly Diagnosed

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  • Understanding Krabbe Disease
  • Krabbe Disease Types
  • Testing, Treatment and Clinical Care
  • Transplant for Krabbe Disease Therapy

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  • Connect with a Clinical Expert
  • Genetic Counselor/Care Team Knowledge
  • Advocating for Your Patient
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Research & Education

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Pennsylvania (Opt-In)

Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.

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