#curekrabbe Family Conference

Each standard room will cost $279/night plus applicable state and local taxes (currently 13.5%). KrabbeConnect will cover your 3-night room stay for the #curekrabbe Family Conference.  However, if you’re able to share any of the costs, please let us know.  This allows KrabbeConnect’s resources to reach more families for this conference.

Should you decide to extend your stay, this will be at your own expense.  All hotel room incidentals will also be the responsibility of the attendee/s.

Yes, KrabbeConnect will make every effort to work with each family interested in attending this conference. Our goal is to ensure the cost of this conference does not burden your family.  However, if you’re able to share any of the costs, please let us know.  This allows KrabbeConnect’s resources to reach more families for this conference.

KrabbeConnnect will cover the following: Friday, April 21^st: Lunch and Dinner; Saturday, April 22^nd: Breakfast, lunch, and dinner, and April 23^rd: Breakfast.  Any food and snacks consumed during travel or at other times throughout the conference will be the responsibility of the attendee/s.

Any family member impacted by Krabbe disease is welcome to attend (parents/caregivers, grandparents, siblings, aunts, special caregivers, etc.), however; KrabbeConnect’s financial resources for airfare/gas/room cost are limited to two parents/caregivers, and any child/adult living with Krabbe disease.

We’re unable to offer sibling care at this time. Additional liability insurance is needed to offer sibling care safely.  Siblings are welcome to attend the conference, but we ask that if a child is being disruptive, please guide your child to another area of the hotel.  It’s important that dialogue can occur at the conference between the attendees and the speakers.

KrabbeConnect invites families to utilize a mask at their discretion.  If you have a condition that weakens your immune system or you take certain medications, you may need to take extra precautions or consult with your doctor before attending.  KrabbeConnect encourages you and everyone you love, care for or care about, to be respectful of others while in attendance at the #curekrabbe Family Conference.

Do not reserve your plane ticket if you need financial assistance to attend this meeting.  KrabbeConnect will utilize the information in the “Reserve Your Spot Now” form to connect with you directly on your travel needs.

Great! Please complete the “Reserve Your Spot Now” form below so we effectively manage the number of attendees at the 2023 #curekrabbe Family Conference.  If you require airline travel, please feel free to book your flights at your convenience.  KrabbeConnect recommends booking 2-3 months in advance of the conference dates to secure cost-friendly airline tickets.  KrabbeConnect will be responsible for reserving all hotel rooms.