#curekrabbe Family Meeting
Join us for #curekrabbe Family Meeting on Saturday, June 25th at the Eaglewood Resort and Spa, in partnership with the United Leukodystrophy Family Conference, June 24th and 25th.
We’re thrilled to offer a half-day meeting to keep patients and caregivers abreast of important information, new programs and resources, industry updates, and valuable projects. This year, the #curekrabbe family meeting will take place in person in partnership with the United Leukodystrophy Foundation (ULF) Family Conference. What does this mean you might ask? Our board of directors believes in partnerships and the sharing of resources. ULF has an established family conference available to the Krabbe disease community and provides a meeting space central to attendees across the United States. At this conference, you will have the opportunity to connect with Krabbe disease families, researchers, and industry partners as well as other families impacted by leukodystrophy. If you decide to attend this meeting, rest assured, that you will leave this co-partnered family meeting with lots of connections, resources, and new ideas to help you continue to navigate your Krabbe disease journey.
#curekrabbe Family Meeting Details
Date: Saturday, June 25th, 2022
Start Time: 9:00 am CST
End Time: 12:30 pm CST
Cost of Lodging: $132/night plus tax
Dates of ULF Conference: Friday June 24th-Saturday, June 25th, 2022. Full ULF Conference details here
Where: Held in person as part of the United Leukodystrophy Foundation’s (ULF) Family Conference at Englewood Resort and Spa located in Itasca, IL.
PLEASE NOTE: Prior to Registering, please review the health and safety protocol of the ULF Family Conference by clicking here.
Register Now: Registration occurs through ULF. Registration for the #curekrabbe Family Meeting will also provide you access to the other sessions conducted by ULF. Register here now but stay tuned to Facebook, Twitter, and Instagram for the latest updates on this meeting. Please register with code word: KrabbeConnect.
Important Note: KrabbeConnect will cover the $25 suggested ULF donation for everyone impacted by Krabbe disease who registers. KrabbeConnect will also offer travel stipends to assist families with their travel needs. To apply for a travel stipend, please complete the form below no later than Monday, May 16th, 2022 at 5:00 EST.
Meeting Agenda: Will be available by end of May, 2022