KrabbeConnect’s mission is to bridge science and patient knowledge to improve care and find a cure for Krabbe disease.
KrabbeConnect’s Vision
To reach a day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
Our Patient-Centered Approach
KrabbeConnect is dedicated to prioritizing patients and caregivers in both care and research. By engaging with the Krabbe disease research community, we ensure your voice is heard. Our patient-centered approach fosters advancements in science, promotes data sharing, encourages standardized care protocols across all treatment pathways, and creates a collaborative environment to help foster the discovery of new therapies for Krabbe disease.