Nikola’s Krabbe Disease Story: Extended Interview

Dragon and Lana, parents of Nikola, sit down with KrabbeConnect, to share their Krabbe disease journey. Krabbe disease is a rare neurological disease that results from the loss of the protective covering (myelinMyelin is an essential material your body uses to surround and protect nerve fibers. sheath) surrounding nerve cells. Dragon and Lana, residents of Virginia, share their story with the hopes of further educating the medical community and others about the need for nationwide newborn screening to allow Krabbe disease patients to live their best life. KrabbeConnect extends their deepest gratitude to the Grujicic and Studio Center for this educational video.