Connecting Patients and Research

Drive research forward! Sign up for KrabbeCURES

Menu

Krabbe Disease
Research, Studies & Trials
#curekrabbe Programs/Events
Education
#curekrabbe Shop
Donate
- Donate to Programs and Events
- Donate to a Family Advised Fund
About Us
- About KrabbeConnect
- Other Information

Zander M.

February 26, 2021 Amy Simmonds

Erie, PA

Filed Under: Heroes

Become a Partner

Are you looking to help make a difference for patients and families living with Krabbe disease? KrabbeConnect wants to collaborate with you! LEARN MORE

Join Our Mailing List

Name*
Email*
Phone
This field is for validation purposes and should be left unchanged.

Contact Us

KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264

(651) 252-4117
Info@KrabbeConnect.org

OUR VISION

A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.

Newly Diagnosed

Treatment and Resource Maps
Understanding Krabbe Disease
Infantile / Late-Onset
Testing, Treatment and Clinical Care
Transplant for Krabbe Disease Therapy

Patients & Caregivers

Connect with a Clinical Expert
Genetic Counselor/Care Team Knowledge
Advocating for Your Patient
Connect with Kevin

Research & Education

Research, Studies & Trials
Clinical Trial
Brain and Tissue Bank
Listen and Learn Webinars
KrabbeConnect Library

Privacy Policy | Terms & Conditions

Pennsylvania (Opt-In)

Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.

Make a Donation