Are you ready for the #CUREKRABBE challenge? The Krabbe community of patients and their caregivers are challenged each day due to their Krabbe disease diagnosis. KrabbeConnect works to help families with these challenges by advancing research, providing family support, enhancing education, and raising awareness. KrabbeConnect believes in working together to help assure a better life for Krabbe disease patients yet, we cannot continue our work without your help! Please join us to #CUREKRABBE in the Portland to Portland 2022 Challenge.
Event Details
| Registration | Register between March 15, 2022 – April 14, 2022 to guarantee the arrival of your t-shirt by May 1st. Registration will be available after April 15th, but your race t-shirt will be delayed for the start of the challenge. |
| Cost | $65/person |
| Race Items Included | Access to the My Virtual Mission application for your mobile device, race t-shirt, 2 #curekrabbe bracelets, milestone race postcards, and several opportunities to win prizes throughout the race. |
| Race Start Date | May 1, 2022 virtually in Portland Maine |
| Race End Date | May 31, 2022-or sooner. Race ends virtually in Portland Oregon |
| Length of Race | 4024.7 - this is a group challenge, everyone’s miles add up together. The more participants, the quicker we get to the finish line. |
How to Register for the Event (REGISTRATION CLOSED)
Step 1
Registration is closed.
Step 2
Download the My Virtual Mission app on your mobile device. You can also log miles using a desktop computer, just go to https://www.myvirtualmission.com/ and click login.
Step 3
Go out and do your regular, distance-based exercise such as walking, running, cycling, going on the treadmill, swimming laps at the pool or whatever type of exercise you are into.
Step 4
Enter the distance each workout you complete into your mission page via either the website or the My Virtual Mission app. You will see the #curekrabbe group mission path update towards the finish line.
Milestones to Achieve
Remember, we are collectively exercising and logging miles as a group. Each mile a participant completes contributes to reaching the next milestone. For every milestone below we reach, a postcard will be emailed out with some fun insights and information. A Facebook live raffle will take place upon reaching each of the 12 milestones listed below. See rewards and incentives for a list of prizes.
| Mile Marker | Place | Giveaway |
|---|---|---|
| 0 | Start of Challenge: Portland, Maine | |
| 272.6 | Albany New York, Capital of NY, Home of first State to screen for Krabbe disease at birth | $10 Starbucks Gift Card |
| 570.6 | Niagara Falls New York. Fun facts about Niagara Falls. Information on Krabbe disease. | #curekrabbe Decal |
| 787.0 | Cleveland Ohio. Fun facts about Cleveland, Krabbe NBS state. Information on Gene Therapy. | $15 Subway Gift Card |
| 950.9 | Ann Arbor Michigan, Fun facts about Michigan, Meet Krabbe families | #curekrabbe tote, notebook, pen, sticky notes, bracelets, and magnet |
| 1233.6 | Mackinaw City Michigan, Fun Facts about Mackinaw Bridge and Island. Meet Krabbe Family. | #curekrabbe mug |
| 1626.0 | Madison Wisconsin, Fun Facts about Madison and updates on NBS efforts in Wisconsin. | #curekrabbe sweatshirt, you choose size and color |
| 1901.8 | Rosemount Minnesota, Headquarters to KrabbeConnect, Meet KC Board of Directors | $15 Dunkin Donuts Gift Card |
| 2138.2 | Des Moines Iowa, Capital of Iowa, Active efforts to add six states to NBS, Meet Krabbe families | #curekrabbe t-shirt, you choose size and color |
| 2693.4 | Interior South Dakota, Fun Facts about the Badlands National Park | $10 Starbucks Coffee Gift Card |
| 3302.8 | Butte Montana, Facts on the Continental Divide and the wonderful National Parks in Montana | $15 Domino's Gift Card |
| 3594.3 | Coeur d’Alene Idaho, Meet Krabbe family, Facts about Couer d'Alene | #curekrabbe tote, notebook, pen, sticky notes, bracelets, and magnet |
| 4024.0 | Portland Oregon: FINISH LINE. Meet Krabbe family. | Generation 3 Apple AirPods |
Rewards and Incentives
Raffle Drawings
For every milestone reached we will conduct a Facebook Live drawing for all registered participants. Prizes will include: Starbucks Gift Cards for Starbucks, Subway and Dominos, #curekrabbe swag like a tote, notebook, pen, sticky notes, bracelets, magnet, mug, sweatshirt, and t-shirt, and a final milestone prize of Generation 3 Apple AirPods! Two participant names will be drawn during each milestone reached. That means each participant has a chance to win 1 of 24 prizes given throughout the race! See the milestones above to learn more.
#curekrabbe Race Decal
When we cross the finish line together each participant will receive a unique #curekrabbe race decal.
Can’t participate, but want to support our #curekrabbe programs?
All sponsors have the chance to add their company’s logo to this t-shirt. Email info@krabbeconnect.org for sponsorship details. Deadline for company logos to be added to the race t-shirt is April 10 2022. All company logos need to be in PNG or JPEG format and be black to ensure high quality printing on the race t-shirt.
All registered participants will receive a #curekrabbe Challenge T-shirt
Sponsors
A Special thanks to the following sponsors for supporting the #CUREKRABBE 2022 Challenge.