The Virtual #curekrabbe Family Meeting
Saturday, June 26th, 2021, 9:00 am CST – 1:30 pm CST
Virtual Event | Part of the United Leukodystrophy Foundation’s (ULF) Medical and Family Conference
We’re thrilled to offer a half day meeting to keep patients and caregivers abreast of important information, new programs and resources, industry updates, and valuable projects. At KrabbeConnect, we continue to work to reach a day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.
Please note, registration will occur through ULF. KrabbeConnect partnered with ULF as they’re a tremendous resource to families impacted by a Leukodystrophy. Registration for the #curekrabbe Family Meeting will also provide you access to the other sessions conducted by ULF. Stay tuned to Facebook, Twitter, and Instagram for the latest updates on this meeting. Updates will also be posted to this page.
Important Note: KrabbeConnect will cover the $25 suggested ULF donation for everyone impacted by Krabbe disease who registers. Each person who registers will also receive a registration package that will include wonderful resources, some snacks, and most importantly, some fun items from our #curekrabbe shop!
The draft agenda is available here. A final agenda will be available 2 weeks before the meeting.
Thank you to our sponsors...
KrabbeConnect graciously thanks our sponsors for being a part of this meeting. The sponsors are as follows:
