May 15 - June 15, 2023
#2023 CureKrabbe Challenge
Are you up for a challenge this summer? Our community of patients experience challenges each day due to their Krabbe disease diagnosis. Please join us for our third annual #curekrabbe Challenge: Bridging the Border run, walk, swim, bike event. Help us to help those individuals affected by Krabbe disease. Registration opens April 1st. Challenge runs May 15-June 15th. Register early to to receive your #curekrabbe swag! You can make a difference and help KrabbeConnect get one step closer to #curekrabbe.
ONGOING
Be the Story – Krabbe Disease Newborn Screening Campaign
Are you interested in being the face of our Krabbe disease newborn screening state fact sheets? We’re on a mission to help bring more education and awareness to Krabbe disease newborn screening. All 50 states must be testing for this condition now to prevent a delayed diagnosis, especially in the most severe forms.
You can be the story to help change Krabbe disease. See which states across the USA do not have a Krabbe disease fact sheet. If your state is not listed, we invite you to share your story.