Ongoing Awareness Campaign
Leukodystrophy and Krabbe Disease Awareness
Neurogene is the proud to sponsor KrabbeConnect’s Leukodystrophy Awareness Campaign to help support families directly impacted by Krabbe disease. “Just Like Me, Too!”, Anne Rugari’s newest publication will be sent FREE of charge to all families who have had a patient diagnosed with Krabbe disease. The book was inspired by Gina Rugari, who was born with Krabbe and received a transplant as a newborn. The book is beautifully illustrated by Gina Rugari which showcases her life through her artwork.
Ongoing Awareness Campaign
"Kacie" the Butterfly
Kacie is beautiful yet delicate – just like each patient diagnosed with Krabbe disease. Kacie is bright and colorful reminding us of the beauty of life and hope. Just as a butterfly and a flower were made to support each other for survival; Kacie was made to support our work at KrabbeConnect.
Please show your support by purchasing “Kacie” for your office, home, or in honor/memory of a special loved one affected by Krabbe disease. Throughout the month of September, we will take this opportunity to teach you about Krabbe disease, KrabbeConnect, and offer friendly reminders on how to purchase your butterfly keepsake.
Butterfly Plushie Supporting Krabbe disease
Cost: $25.00 + shipping*
Orders should be placed directly through Rokkit Crafts either through their website or through the Rokkit Crafts Etsy page.
*$5 of every butterfly sold will be donated directly to KrabbeConnect.