Krabbe disease is one of over 50 identified Leukodystrophies. Leukodytrophies are a group of diseases that causes degeneration of the myelin, or "white matter" of the brain. The word leukodystrophy comes from the Greek roots-leuko meaning white, dys, standing for lack of, and trophy, meaning growth. Every individual requires healthy production of myelin for speed and accuracy of nerve impulses within the brain.
The award winning 1992 American drama film, Lorenzo's Oil, brought awareness to one of the Leukodystrophies known as Adrenoleukodystrophy or ALD. Though ALD is the leukodystrophy most are familiar with, Krabbe disease is another relatively common form of leukodystrophy.
Take a moment now to learn more about Krabbe disease, the debilitating side affects due to the disease, KrabbeConnects efforts to support patients and caregivers to make the journey less stressful, and most importantly, consider making a donation today. Any donation WILL help make the life of a Krabbe patient better!!
Can't make a donation today, no problem! Please help us spread awareness to others that can help by downloading this printable flier. Any effort you make on your part will help us reach out to others who may be looking for a way to make a difference in the lives of a patient affected by this rare disease.
Butterfly Fundraiser
It’s Leukodystoprhy Awareness Month! At KrabbeConnect, we think this is a perfect month to launch “Kacie” the butterfly. Kacie is beautiful yet delicate – just like each patient diagnosed with Krabbe disease. Kacie is bright and colorful reminding us of the beauty of life and hope. Just as a butterfly and a flower were made to support each other for survival; Kacie was made to support our work at KrabbeConnect.
Please show your support by purchasing “Kacie” for your office, home, or in honor/memory of a special loved one affected by Krabbe disease. Throughout the month of September, we will take this opportunity to teach you about Krabbe disease, KrabbeConnect, and offer friendly reminders on how to purchase your butterfly keepsake.
Butterfly Plushie Supporting Krabbe disease
Description of butterfly.
How to Order:
Cost: $25.00 + shipping*
Orders should be placed directly through Rokkit Crafts either through their website or through the Rokkit Crafts Etsy page.
*$5 of every butterfly sold will be donated directly to KrabbeConnect.