Krabbe disease is one of over 50 identified Leukodystrophies. Leukodytrophies are a group of diseases that causes degeneration of the myelin, or "white matter" of the brain. The word leukodystrophy comes from the Greek roots-leuko meaning white, dys, standing for lack of, and trophy, meaning growth. Every individual requires healthy production of myelin for speed and accuracy of nerve impulses within the brain.
The award winning 1992 American drama film, Lorenzo's Oil, brought awareness to one of the Leukodystrophies known as Adrenoleukodystrophy or ALD. Though ALD is the leukodystrophy most are familiar with, Krabbe disease is another relatively common form of leukodystrophy.
Take a moment now to learn more about Krabbe disease, the debilitating side affects due to the disease, KrabbeConnects efforts to support patients and caregivers to make the journey less stressful, and most importantly, consider making a donation today. Any donation WILL help make the life of a Krabbe patient better!!
Can't make a donation today, no problem! Please help us spread awareness to others that can help by downloading this printable flier. Any effort you make on your part will help us reach out to others who may be looking for a way to make a difference in the lives of a patient affected by this rare disease.