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2020-04-27 Krabbe Connect TShirt Fundraiser

#CureKrabbe T-Shirt Team Fundraiser

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Donated to KrabbeConnect

Countdown to Fundraiser Close

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It’s t-shirt time!  Join us for our 1st ever #curekrabbe T-shirt Team Fundraiser.  We need you more than ever to ensure we can continue the fight against this life-threatening disease.  Our families impacted by Krabbe disease need access to resources to assist in planning, coping, and making difficult decisions.  They also need to know that new treatment options are still being expedited even in the midst of the COVID-19 turbulence.

Please, join us in the fight.  For this fundraiser, we’re utilizing Bonfire.  Bonfire is an online premium       t-shirt vendor that will handle the payment processing, order fulfillment, and shipping so we can completely concentrate on the fundraising element.

Act now to kick your fundraising efforts into high gear, whether you have a direct connection to the disease or not, everyone is invited to make a difference!  Download our #curekrabbe T-Shirt Flyer to learn how to register your team today and start fundraising.  Be sure to check out our pretty awesome prizes to help keep you motivated to reach the #curekrabbe finish line.

Quick Links:
  • Order Design 1 T-Shirts on Bonfire
  • Order Design 2 T-Shirts on Bonfire
  • Live Form to Register Your Purchase
  • Team Tracker
  • Flyer for Sharing
  • KrabbeConnect Facebook Page
  • Team Tracker Sample
Want to participate in the fun and support a team but don't have a need for the swag? You can make a donation to a team without purchasing a t-shirt by clicking here.

Leader Board

The prices below reflect the total dollar amount of t-shirts sold, of which, a portion will be donated to KrabbeConnect. It also reflects direct donations to KrabbeConnect for the purpose of this fundraiser. THANK YOU FOR YOUR SUPPORT!

Quinton’s Quest for a Cure
$
  • Adult T-Shirt: 67
  • Youth/Child T-Shirt: 4
  • Direct Donation: $492
Makayla's Crusaders
$
  • Adult T-Shirt: 41
  • Youth/Child T-Shirt: 3
  • Direct Donation: $360
Collin's Crew
$
  • Adult T-Shirt: 42
  • Youth/Child T-Shirt: 2
  • Direct Donation: $100
Remembering Ashley
$
  • Adult T-Shirt: 13
  • Youth/Child T-Shirt: 0
  • Direct Donation: $360
Rugari Inspiration Team
$
  • Adult T-Shirt: 10
  • Youth/Child T-Shirt: 2
  • Direct Donation: $115
My Girl-Makayla
$
  • Adult T-Shirt: 14
  • Youth/Child T-Shirt: 0
  • Direct Donation: $50
The Gene-ies
$
  • Adult T-Shirt: 4
  • Youth/Child T-Shirt: 5
  • Direct Donation: $78
The Techmeier Squad
$
  • Adult T-Shirt: 3
  • Youth/Child T-Shirt: 4
  • Direct Donation: $125
M&M’s Movement
$
  • Adult T-Shirt: 2
  • Youth/Child T-Shirt: 1
  • Direct Donation: $25

Last updated: Fri, 5/21/2020 9:50 PM

T-Shirts Sold

Adult Shirt - KrabbeConnect Fundraiser (1)

Design 1: 150 Sold!

Order Design 1 Shirt
Child Shirt - KrabbeConnect (1)

Design 2: 67 Sold!

Order Design 2 Shirt

Final update: Tuesday, 05/19/2020 7:30 PM EST

How to Participate

Step 1

Name your team and register it below for $25.

Download the #curekrabbe T-shirt team tracker (.doc).

Each registered
team will receive 1 #curekrabbe decal in the mail.

Step 2

From May 1st - May 18th promote your team on social media. Be sure to share your Krabbe disease
story and the T-shirt links below:

Adult Shirt: https://www.bonfire.com/curekrabbe-t-shirt-fundraiser/

Child Shirt: https://www.bonfire.com/curekrabbe-t-shirt-fundraiser-1/

Step 3

Report, using the #curekrabbe            t-shirt team tracker form, the individuals/families who purchased t-shirts in support of your team.

 

You can also ask your supporters to report their own purchase by filling out this short form.

Step 4

Email your completed form to anne.rugari@krabbeconnect.org by Thursday, May 21st, 2020.

Prizes and Winners!

2020-04-27 Prizes Image

The below prizes will be announced May 22nd at 12:00 PM (noon) CST on the KrabbeConnect Facebook Page.

2020-04-26 $75 Gift card - KrabbeConnect

Donor Champion

The team that raised the highest number of donations* will win a $75 Amazon gift card and a #curekrabbe cape.

2020-04-25 Gift card - KrabbeConnect

T-Shirt Champion

The team that ordered the highest number of t-shirts will win a $50 Amazon gift card and a #curekrabbe cape.

2020-04-26 $25 Gift card - KrabbeConnect

Adult T-Shirt Warrior

The team that ordered the highest number of t-shirts will win a $25 Amazon gift card and a #curekrabbe cape.

2020-04-26 $25 Gift card - KrabbeConnect

Child T-Shirt Warrior

The team that ordered the highest number of children's t-shirts will win a $25 amazon Gift Card and a #curekrabbe cape.

Copy of 2020-04-25 $100 Gift card - KrabbeConnect

Superb Team Advocate:

The 1st individual/family to register their team on KrabbeConnect.org will receive a KrabbeConnect bag full of goodies and a $10 Starbucks gift card.

* Donations relates to the total amount an individual/a donated in addition to purchasing a t-shirt

Sign Up Your Team

  • #curekrabbe T-shirt Team Registration

  • What would you like to name your team?
  • Price: $25.00
  • Your Contact Information

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Questions? Email info@KrabbeConnect.org.

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Contact Us

KrabbeConnect
P.O. Box 264
Rosemount, MN 55068-0264

(651) 252-4117
Info@KrabbeConnect.org

OUR VISION

A day in which each patient receives an early diagnosis, has access to state-of-the-art care, and lives a life free of Krabbe disease.

Newly Diagnosed

  • Treatment and Resource Maps
  • Understanding Krabbe Disease
  • Infantile / Late-Onset
  • Testing, Treatment and Clinical Care
  • Transplant for Krabbe Disease Therapy

Patients & Caregivers

  • Connect with a Clinical Expert
  • Genetic Counselor/Care Team Knowledge
  • Advocating for Your Patient
  • Connect with Kevin

Research & Education

  • Research, Studies & Trials
  • Clinical Trial
  • Brain and Tissue Bank
  • Listen and Learn Webinars
  • KrabbeConnect Library
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Pennsylvania (Opt-In)

Currently Krabbe disease is not automatically screened for in the state of Pennsylvania. Parents must request or “Opt-In” to have Krabbe added to the newborn screening tests done at birth.

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