2018 Leukodystrophy Awareness Campaign!
Krabbe disease is one of over 50 identified leukodytrophies. Leukodytrophies are a group of diseases that causes degeneration of the myelin, or "white matter" of the brain. The word leukodystrophy comes from the Greek roots-leuko meaning white, dys, standing for lack of, and trophy, meaning growth. Every individual requires healthy production of myelin for speed and accuracy of nerve impulses withing the brain.
The award winning 1992 American drama film, Lorenzo's Oil, brought awareness to one of the leukodtrophyies known as Adrenoleukodystrophy or ALD. Though ALD is the leukodytrophy most are familiar with, Krabbe disease is another relatively common form of leukodystrophy.
Take a moment now to learn more about Krabbe disease, the debilitating side affects due to the disease, KrabbeConnects efforts to support patients and caregivers to make the journey less stressful, and most importantly, consider making a donation today. Any donation WILL help make the life of a Krabbe patient better!!
Can't make a donation today, no problem! Please help us spread awareness to others that can help by downloading this printable flier. Any effort you make on your part will help us reach out to others who may be looking for a way to make a difference in the lives of a patient affected by this rare disease.
2019 March Madness Brackett Challenge
It’s that time of year again where KrabbeConnect invites all basketball enthusiasts, affected patients and family members, as well as industry supporters, to participate in our bracket challenge. Get in on the NCAA basketball championship excitement and receive a tax-deductible donation for your participation!
How to Participate:
- Click on the Donation tab and make a tax-deductible donation. The minimum donation for 1 bracket is $25. If you donate $100, you will receive 4 pool brackets.
- For every $25 donation you can select the teams you think will win from the first round all the way through the championship game. You’ll get points for each game you pick correctly, with the points increasing during each round of the tournament.
- Once you submit your donation, you will receive instruction by email within 24 hours of your donation, on how to enter your pool bracket's
- Don’t care about basketball or selecting any teams in the Bracket Challenge? No problem, your donation is still tax-deductible, and you can let someone else play your bracket or simply just donate-either way you will MAKE A DIFFERENCE!
*** Please check back in February of 2019 to register for this event!